Monday, April 26, 2010

Well, here we are on Monday, April 26 at 4:30 in the afternoon. I just got up from my second nap of the day. I just go from sitting in the big leather chair in the family room to laying on my bed. After a couple of hours in the chair I am exhausted and need a nap. What a life!!
Last Friday I went back to see Hillary in Dr. Tan's office. She took out the last two drains, one from each side. I felt like a free woman. And it was not nearly as bad as earlier in the week. Each day continues to get a little bit better than the last. The pain level is getting better. I called a doctor friend last Saturday and she wrote me a new prescription for something that could be taken along with the Motrin. Between the two of them things are a lot better. If I just stay on top of it, the pain stays under control. So that is what I am trying to do.
Shannon got the last report pretty accurate. My appointment with Dr. Kruper went very well. The staging is all right there. I am just waiting for the oncology people to call and tell me when they want to see me. I have an appointment next Tuesday for the bone scan and CT scan. They wanted to also do the first fill of these little mini boobs that I have, but considering how sore they have been, I have opted to hold off for a couple of weeks until after the scans are finished. Then we will tackle that little job.
I wandered out to the workroom this morning. Reina was out there busily working away. Everything looked good, so I told her to just keep going and I came back in the house. So much for running a business.
Steve, Michael and Shannon are all touring Madrid right now. I get e-mails from them everyday with their updates. Michael is sending back pictures for me to see. So in some ways I feel like I am there. However, this is no substitute for the trip that I will take when this is all over. Steve has promised me that we will go back. That is my incentive to lick this thing and get better.
I can't end this post without thanking everyone for all of their kind thought, prayers, food, telephone calls, cards, more food, visits, and general concern. My good friend, Deanne, came and moved in last week. I could not have done it without her. I don't know what I thought this would be like, but it has been so much worse, that without her constant help, I would, I don't know what, not have made it. She has gone home now, and my mother is here for the rest of this week. I still cannot dry my back out of the shower or reach the top shelf of the refrigerator, or get a glass off of anything except the bottom shelf. I have to flip the hangers to get my clothes down from the closet. I never thought about this when I put those closet poles that high up. I have to start doing some exercises to get these muscles to stretch out. It is just so painful. But I will keep working. So to everyone. . . . THANK YOU. I am getting better.


  1. I'm so glad to hear the pain is getting more manageable, and you paint perfect images of how frustrating it is to not be able to go at full steam. I'm glad you're taking multiple naps a day!! I've been wishing that for you for a long time!

    I'm sorry I can't be there to lend my own hands, but equally grateful for my mom who made it work. She loves you immensely. I know you know that. I love you, too.

    The little Ririe family is praying for you every day. I've never said this many prayers in a row for one person!! Doesn't make up for not being there, but it will have to do for now.

    Many smooches and delicate hugs.

  2. Janet,
    It was so great to see you were able to post and I was amazed how long you were able to keep it up. I am sure you worked some muscles by all that typing (is that what they still call it?)
    I plan on calling you next week. My high school friends are all going to Palm Springs for our 60th birthday party this weekend...yikes, we really are just graduating in our heads.
    I had my CoH appt. yesterday and my platelet counts have been over a million for a month now, so today I started the meds. I go back in 3 weeks, I keep looking for you. I am sure we will pass in the halls one day. In the meantime, I would like to come for a short visit, but we will plan this next week, if you are up to it.
    Love you friend,
    Keep up the good work and positive attitude. We are all proud of you. I bet you don't realize what an inspiration you are to us (OK, I can see and hear your comments on that one, but you are)
    See you soon and know we are all continuing our prayers for you and the family.
    Denise xoxoxoxoxoxo

  3. I'm so glad your pain level is lessening and you feel some real healing happening. I know it's hard for you to feel limited. You were already fighting against fatigue and pain everyday before this happened. It has really been a blessing for you to nurture friendships like you have. Your friends are angels. I have a feeling having your mom there will create a new, closer relationship. I would love to come down when you have a lull in help.

    Love you more than you'll ever know, Judy